Yes, I know that this is an old topic, but two things need to be updated.
Just had my co-pay grant renewed/approved for another year.
... and, the cost is still crazy! $17,125.08 + 901.32 = $18,026.40 per month!
And, Kay has been encouraging me to make a stethoscope for my Pulmonologist and I think my energy levels have increased enough so that I might just be able to pull it off.